Saturday, July 30, 2011

TRAP sequence




The official name for my diagnosis is TRAP sequence. Twin reversal arterial perfusion. Basically, it means that Baby A, the healthy baby, is connected to Baby B. They were identical twins, so they are in the same gestational sac. Even though Baby B passed away, the connection means it has a blood supply. Baby A is pumping blood for her little body and for her would-have-been-sister's little body. So even though Baby B does not have a heartbeat, her body is still developing through this blood supply.

Problem #1 - Baby A can go into heart failure because she is pumping blood for 2 babies.

Problem #2 - Baby A can get sick if the blood flow that is being sent to baby B reverses and starts to go back into Baby A.

Solution #1 - If Baby B gets to be too big, I will go to one of the 5 places in the nation that performs surgery for TRAP sequence. This surgery consists of searing the connection between Baby A and Baby B. This is only done once the baby is big enough and between 18-24 weeks of pregnancy.

Solution #2 - Monitor through ultrasounds and fetal echo cardiograms to see if Baby B is growing, if Baby A is healthy - this solution usually results in preterm labor as Baby A will either get sick or go into heart failure.

It's hard to know what to pray for in this medical rarity. Initially, I was completely afraid of the surgery, wanted to know the risk of miscarriage associated with it, and wanted everyone to pray that Baby b stops growing so that I don't need the surgery. Paul was leaning towards the surgery since, if it goes well, results in a full term baby. The more research I have done on this, the more I guess I am leaning towards the surgery as well.
Not doing anything almost guarantees that Baby A will be delivered early. And doing the surgery has a risk of miscarriage. Our emotions sway this way and that - today it just feels like an unfair decision to have to make.

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